I hope you all had a wonderful summer. Although I took a blog break, I’ve still been stalking everyone else’s blogs this summer and commenting here and there. I guess this post means that I’m back… for now!
Although I can point to a reason [endometriosis] for my thus-far lack of babies, my unexplained non-period bleeding persists. I’ve been blogging consistently about intermenstrual bleeding for two years now. I know you’re all bored stiff by it. So am I. I’ve visited umpteen docs in that time, none any better than the other, who’ve performed procedures (cauterization), run tests (biopsy), and cut me open (laparoscopy) to try fixing the issue.
No-go. Still, I bleed. Like clockwork, each doc unhelpfully informs me that, “It’s just your hormones,” “Nothing can be done,” or, my personal favorite, “You’ll have to find a way to learn to live with it” (like, what do you think I’ve been doing these past two years?!). None of these docs actually test my hormones, mind you. They just give me the same old canned answers out of, I don’t know what… noncommital laziness, perhaps?
This summer I visited my GP because my pelvic pain has been worsening and the bleeding is taking over my life. My GP (Dr. Cooper for today’s pseudonym) is a totally awesome chick, and visiting her is like chatting with a girlfriend who also just happens to be a super smart doctor. I had high hopes she could help.
After patiently listening to my side of things and asking well-thought questions, Dr. Cooper developed an attack plan: I’d have a much-needed updated pelvic ultrasound and my hormones thoroughly tested. After reviewing my results and some careful cogitation, she’d refer me to another doc worth their salt. I liked her plan: simple, yet effective. The prospect of answers and relief was very enticing.
Other than showing that I have a uterine fibroid, my ultrasound was unremarkable. Same with my blood work. All was in order, save that my Sex Hormone Binding Globulin Serum (or “Sex Goblin” as Jake and I like to call it) was off the charts because of my still-uncontrolled thyroid. Much as I’d like to blame him, my misbehaving Sex Goblin isn’t responsible for all this bleeding and pain.
To my dismay, Dr. Cooper referred me to Dr. B. Yes, the very same Dr. B. whom I long-ago fired because he had the personality of a potato. Aaaand the same Dr. B who also no longer practices medicine; I guess Dr. Cooper missed that part of the story. Another dead end.
Still, I bleed. Unresolved. It’s slowly driving me crazy. And isn’t that the worst way to go?
White. flag. waved.
Ugh. Im sorry. I think not having an answer is worse than having an answer, even if it is one you dont want to have. I dont blame u for going crazy about it. I was the same way about my recurrent pregnancy losses.
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😦
I’m so sorry. It is just so frustrating even to read, I can’t imagine how frustrating it is to live out.
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So sorry… how frustrating!! Hoping you’ll get answers soon!!
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So frustrated and disappointed for you!
But also laughing at Sex Goblin 🙂
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Might as well make it fun along the way !
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OMG I honestly don’t know how you keep going with such positivity?! I didn’t know too much about endometriosis before I started following you and now every time I hear of someone else with it I wonder if they suffer like you do. I’m sure if men had this issue they would have worked it out by now. How do we donate to research in this? I’d be keen to sign up in your name.
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Aww, this is one of the nicest comments ever! Interesting thought that if men had endo then it’d be cured by now; food for thought. The Endometriosis Foundation of America is supposed to be a good research foundation for endo. Being overseas, I’m not sure how that would work in currency exchange, but I’m sure if you contacted them they’d find a way to accept your donation. Thanks for still reading my blog, it means a lot! xx
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Wow, I’m so sorry you’re still struggling with this. I can’t imagine it. I’m frustrate for you and I really hope you can find some help.
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