It’s now week five of quarantine life. At least I think it’s week five: it could be week 50, or even 500, for all it feels. So I’ll count this as week five-ish. The days and weeks are all starting to blur together lately. But I don’t want to write about quarantining or the likes today; those topics are for another day.
Let’s talk instead about the fact that I bled for my entire 35-day cycle last month. Well, that’s not entirely accurate: there were those two ‘free’ days when I barely bled… But the rest of them? Total nonstop bleeding… and pain… ad nauseam.
To investigate the bleeding, Dr. Ruby sent me for another ultrasound. You might remember that in March, ultrasound showed my scary cyst from January seemed to be resolving on its own. Turns out, that cyst actually didn’t resolve . Dr. Ruby’s explanation is that my bowel was obstructing the view during the March ultrasound (huh?), which means the complex cyst was still there—and growing—but couldn’t be seen on imaging. I don’t understand the ineptitude of technician, radiologist, and even Dr. Ruby in this regard, but I’m no medical expert.
In addition to the growing complex cyst, I also had two smaller cysts that are (were?) filled with blood. Maybe those cysts explained my 35-day bleed.
Anyway, I thought it very fitting to have a pelvic MRI during National Infertility Awareness Week!
My MRI results showed several simple cysts on my ovary, plus one endometrioma (which is the complex cyst previously seen on ultrasound). The pic below is taken from my report. My problem child cyst is most likely an endometrioma and not a hemorrhagic cyst. If you’re into science-y medical things, an article I found here discusses the difference between the two types of cysts by using the T2 Dark Spot Sign as an indicator.
Now, here’s the kicker of the whole Cyst Debacle. Verbatim, Dr. Ruby’s message to me this morning was this: “There are multiple cysts on the left ovary one appears to be endometriosis vs hemorrhagic cyst the others appear simple. if you are having any pain with the cysts we can consider a progesterone shot to help resolve the simple cysts.”
That is it. I am left speechless, and certainly with more questions than answers. After everything: the pain, the bleeding, multiple imaging studies, hundreds of dollars spent… I am offered a progesterone shot?????? To say I’m disappointed in that so-called response is an understatement. I’ve left a message with Dr. Ruby this morning which is laden with my many questions. Hopefully, she’ll respond well.
But is it super pessimistic for me to not have high hopes for that outcome? To expect the usual runaround: “You have endometriosis. We know nothing about it. We can do nothing about it. Here is a useless band aid for your trouble”? Is it not completely uncool that that is the norm in the medical world’s attitude toward endo?
Sorry for the vent. I realize we’re in the midst of a pandemic and the woes of endo pale in comparison.
Update to follow. ❤